30.9.10

Gracies neurology appointment

We went to Gracies Neurologist today and we are now waiting for the insurance authorization to do a 24 hour EEG.  The Neuro wants to see if she can catch one of her head tremors, and see if this is a seizure ..... or something else.  So, once we get the prior auth, we are going to be admitted into the hospital, she will be hooked up to all the lines and wires, and we get to 'enjoy' the hospital for roughly 30 hours.  not really looking forward to it, yet we NEED to do it.  I hope that we can catch a tremor or two so that the dr can get a good view!  Ill update more as we learn info.  :) 

Thankful for friends

I just have a few things to say.  I am so thankful for friends.  I do have many friends, and I am very lucky for this.  I know that when I need help, my friends will be there to help me.  Sometimes its by helping with the kids .. sometimes its by calling me .. sometimes its simply by posting me a message or comment saying just what I need to hear.  There have been times when I have truly been saved by my friends, and I am very grateful. 

29.9.10

much on my mind tonight

Well, I have a lot on my mind tonight.  Some I can talk about, some I can not.

I had a rough day today .. lots of emotions going on .. got really ticked off at a company that we have no choice but to work with ... I was so ready to bash heads today.  sigh. 

And tomorrow, I have another appointment for Gracie.  Tomorrow is her Neurology appointment .. I am SOOOOOOO thankful for it. . we NEED it for her. BUT ... I cant take Nik or Maya, and therefore, yet again, I have to call upon friends to watch them.  I feel bad for this, for a few reasons.  For one, I am calling on someone at least once a week to watch them.  Two, one of my friends is nearing the end of her pregnancy, and doesnt have the energy she used to have .... Three, I miss being able to call on my BFF Karleen (who moved from here to Alaska earlier this year .. sniff sniff) and my dear friend Liz (who is now a school teacher and therefore cant help during the day)

 I have a son who wont go to bed at night .. no matter what ... he comes in the room over and again and again ... and finally we give up and let him sleep on the floor in our room,  simply to make it so that we can get some sleep. 

I have ....

oh sigh Im sorry ... its just one of those nights.  tomorrow Ill feel better about things.  Life goes on, even though the normal stresses of life.  sigh

28.9.10

ADD / ADHD

ADD and ADHD are not HANDICAPS.  They are not LABELS.  They are not BAD.  They are just a part of life for some people.  Do ADD/ADHD folks need to be medicated? some do, some don't.  is it BAD to medicate those with ADD/ADHD?  NO!  If they TRULY have it, and the medication helps them, then by all means, USE IT! 

The problem with medication though, is that all too often, especially in children, there is a MIS-DIAGNOSIS!  And if the child/person does NOT have ADD/ADHD, then the medications will really mess things up.  There are too many people on the medications that do not actually HAVE ADD/ADHD ... there systems get all jacked up ... and then there grows a stigma about ADD/ADHD medications. 

Why am I talking about these things?  Well, my husband, daughter, and son all have it.  I live with it every day.  There are times when it can get aggravating, yes.  But, there are times when I dont even think about the fact that my house is filled with those who have these dx.

All 3 of them have different reactions to theirs.  With Tom, he has to fidget a lot.  You will always find him with either silly putty, a small toy/lego, or something similar in his hands, as he absentmindedly diddles with them.  We have learned that while he does this ... he can concentrate a lot better.  His legs (mostly his right leg) bounces up and down constantly.  Most people dont even notice it, because it is only slightly moving, yet, it is moving none the less.  Again, it is an "out" for his ADD.  Though concentration is not his 'main' issue with the ADD.  He has a hard time with change.  I learned this the hard way early on in our marriage.  I LOVE change ... so, I used to rearrange our kitchen and livingroom in our first apartment, all the time. the microwave would move, the toaster would move, the chair would move, the end table would move, etc.  It took me quite some time to realize how hard it affected Tom.  Once I figured that out ... I stopped doing the rearranging. 

With Christopher, he received his dx at age 3.  We started him on medications at that time, but quickly learned that he was NOT ready for the meds, and took him off of them.  If you know Chris only at the school, you would never EVER guess he has ADD.  Once he gets on the bus to go to school, he is able to put the ADD "on hold" ... and is such a fantastic student!  He THRIVES on the structure of school.   Though I try to continue the same structure at home, its just not the same.  Then, when I pick him up from school .... all of the pent up energy, attitude, etc blows up all at once and he has a rough time for about half an hour.  But you know, Id MUCH rather have it this way, because he does fantastic at school .. and I can deal with his blow ups at home.  Im his mom, so its OK.  Though, he has 'other' issues connected with the ADD.  He has a very hard time sleeping.  No matter how tired he is, he has a very hard time going to sleep before 10 or 11 pm.  and thats when we are lucky.  There have been times when we have had to lay with him until past midnight ... hoping he would finally fall asleep.  But, we are working with him, and that is all we can do at this time in his life.

Gina hasnt officially received her dx yet, but we are working on that.  We are learning now that she has a very hard time concentrating in school.  Her attn is elsewhere.  Her teacher says that she can be looking at Gina, telling her some instructions, and Gina is just, there yet not.  And then, Gina can not remember receiving those instructions.  She doesnt have the excess energy that Chris has ... she doesnt blow up like he does ... but, she just cant seem to concentrate on one thing / task for very long. 

My mother in law has a LOT of experience with ADD/ADHD, as her boys all have it.  She has seen many different views on it.  She has experienced many issues with teachers, school leaders, etc, because of the actions of her boys.  She has watched the reactions of her sons as they tried many different medications ... some worked, some did not.  Some worked for one, while not for another.

There are many people who think that ADD or ADHD is an excuse.  well, for some, it might be.  But for my family, it is NOT.  It is a part of life, and we have learned, and are continuing to learn how to live with it, in its many forms and realities. 


So, if you know someone, or have a family member or friend who has ADD / ADHD .. remember ... you can make it a "label" an "excuse" a "handicap" .... but you dont have to.  Its not easy .... but its something that CAN be worked with and lived with ... :)

27.9.10

Gracie's 'stuff'

So, one of the problems we have had with Gracie, is her head tremors.  She will be sitting, looking at something, and her head will begin to shake.  They last normally between 5 and 30 seconds.  then she goes out of it and is back to "normal" ... she has quite a few tremors a day.  This evening alone, in the last 2 hours, I personally have seen her have 8 episodes.  Gina tells me she has seen a couple as well.  Tonight is worse than normal .. as far as we can tell.  We dont know what is "different" tonight from any other night, to cause her to have more tremors ... but we will for sure keep a stronger eye on her through the night.

She has an appointment on Thursday with her Neurologist, and I am so thankful we will finally be seeing her.  There are quite a few things I am wanting to discuss with Dr. Fike, but the fact that the tremors are increasing is really worrying me, and I am so thankful we are only a few short days away from being able to talk about them.  I dont know what is causing the tremors .. if they have any relation to seizures, or whatever it may be.  We are probably about to begin a lot of tests on the neurological side of things .. to add to the other tests we are already doing for other situations. 

She is eating ... a "LITTLE" more .. meaning she is willing to swallow maybe a bite or two of puree's a day!  THAT IS FANTASTIC NEWS for this little one!  but ... she is beginning to lose ounces ... which is NOT a good thing.  Now that she is crawling .. and getting better at  doing so (she can crawl nearly half way across the livingroom in one go now before having to stop and rest!! YAYAYAY!) she is needing the calories more and more ... yet she is not getting them.  We are more than likely going to start adding more calories to her bottles to try and keep up for her. 

Nik is being so helpful.  He loves to play "chase" with Grace ... he'll crawl a bit, then stop, look behind him towards Gracie, grinning, as if to say "are you gonna get me?" then Gracie giggles and follows him ... when she begins moving he moves again a ways, stops and looks back again .. its the cutest thing EVER!  He wont go too far, as though he KNOWS that she can only go a little ways before she has to stop and rest... and he waits for her .. even though this boy can really BOOK it and MOVE FAST! LOL .. he waits for his sister.  and she learns from him daily! Its fantastic.  Nik truly is a blessing to our family ... and more to Gracie than any other in our home.  Gracie has learned so much from him in the few months he has been in our family ... and now, they cant stand to be apart from one another. 

The Lord truly knows what He is doing in our family.  :) 

Day one.

So, I have begun day one of my 8 week challenge.  Last night was officially the beginning, as I was to have 7 hours of sleep last night.  You know, I think THAT is going to be my biggest challenge ... even over taking out junk food stuff ... because I have 2 babies who still dont sleep through the night, and they NEVER wake at the same time as the other ... BUT .. I scraped by last night and GOT my 7 hours!  just barley, but I did it! 

One of the things that I have decided with this challenge ... in the end, I want to have lost weight.  Will I set a loss goal? no.  Why? because my MAIN goal is to have gained better habits once more.  Ive done it in the past, I can do it again.  But, with this challenge, I have a better chance of doing it ... I do much better when I am "CHALLENGED" then when I just decide on my own to try this or that.  So in the end of these 8 weeks, so long as I stick to this, and follow through, not only will I gain new, better habits, but, I WILL have lost weight.  Its kind of an added bonus to this!  with the eating better, and exercising for 45 minutes daily ... :) yay! 

So, day one has begun, and I am going to be going out today to buy more veggies and fruit ... because my kids have decided that they want to do that part with me (wee ha!) Im also going to buy myself a better water bottle .. since I will be drinking more water (I already drink a lot, but, may as well add!)

So, I have a full day ahead of me, and I AM GOING to earn my 10 points today! PERIOD! 

26.9.10

8 weeks to a better ME!

So, starting tomorrow morning, I am going to participate in a challenge, called "8 Weeks to a Better YOU!"  ... Here is a link to the information . . ."heres the deal" .. 8 weeks to a better YOU!   ..

So, one of the things that I am to do in this challenge, is to write for 15 minutes a day in my journal, or, in this case, my blog.  SO . .. you will be seeing me blog EVERY day, for 15 minutes a day, for the next 8 weeks.  You might get bored, and not read, and that is up to you.  as for me, Ill do the writing anyways.  lol

I am also going to be doing much more, to make myself better.  there are about 20 of us that are doing this challenge right now.  Im really nervous .. yet excited.  my goal by the end of the 8 weeks .. is to have actually DONE it! LOL.  one day at a time .. thats all it takes.  and in the end, there WILL be a better me!

but, for now (tee hehehe!) Im taking one last opportunity to have a banana split ;) (cause there will be no more sweets for the nest 8 weeks!! gasp!).  its now made and ready for me, so I guess Ill "talk" with ya tomorrow!

24.9.10

Nik

Nik is number 5 ... and is only 16 days younger than Gracie.

We have known about Nik since before he was born, because he is my BFF's grand nephew.  But, we learned in June that he had been placed in CPS custody, and by July 2, he was in my arms. 

He is a MOVER let me TELL YOU! LOL This boy does NOT know how to stay still!  He crawls everywhere like a speed racer, and he is ready to start walking at any time. 

He has been such a big help with Gracie .. as she watches everything that he does.  He loves to play chase with her, now that she is crawling finally .. he will crawl, giggle, stop and look behind him "telling her" in his own little way to "come and get me!"  and what does she do?  Giggle and crawl after him!  he moves again and stops to wait for her once more!  He is so smart that way! 

He is also strong willed and wow .. when he wants something LOL he makes it KNOWN! 

At the moment, though we would LOVE to adopt him, (and there is a chance!) we have to wait for the court to decide where he will be adopted.  We already know that his birth parents rights will be terminated .. its just a matter of deciding as a court, where he will stay forever. 

Gracie

Gracie is number 4.  She will be ONE YEAR OLD in November! GASP! 

We learned about Gracie when she was 13 days old, and the following day I went to pick her up from the NICU.  She was a whopping 4 pounds 2 ounces when I brought her home! (she was 3 lb 11 oz at birth!)  and preemie clothes were too big for her! 

She has some developmental delays ... due to her prematurity, and a few other factors.  We have quite a few therapists for her ... and specialists.  BUT ... though she has these disabilities,  this does not define who she is.  She is a bubbly, happy, bright eyed baby girl who LOVES her siblings ... is a MAJOR daddy's girl, and oh yeah, she likes me too ;)  her giggle is simply TOO cute for words! 

She is a go getter ... she has figured out how to do things in HER OWN way ... and she has yet to give up on anything!  Im so lucky to be her mommy! 

Oh, and yes, she is a forever member of our family as well .. and will finalize her adoption with in the next few months.  :) 

Maya

Maya is our number three.  She will be 4 years old in January .. her birthday is the day after mine, which means my birthday is forever in the shadow of this lovely little one.

We FIRST received "THE CALL" about Maya in May 2009.  She came to us that very day.  She didnt talk, had anxiety problems, and a handful of other 'issues' ... she had been in another foster home that wasn't in her best interest (to put it lightly) .. but, within a week, she began to open up and blossom!  She lived with us for 5 months, and was able to go ... "home" to her birth mom.  at the time I was sad to see her go, yet excited to have participated in a reunification!!!  BUT .. sadly, only 5 short months later ... we received an emergency phone call, and she was back in our home in February 2010.  This time though, she is HERE TO STAY. 

Maya is so energetic!  She loves to sing, make people laugh, and make sure everyone is "OK".  Her favorite cartoon is Dora .. and she simply adores Sesame street.  She would LOVE to be more of a helper to the babies, but alas, she isnt too much bigger than they are right now! LOL

Maya is a joy to have and a fantastic addition to our forever family!

Chris

Chris is our second ... he will be 7 in November. 

We received "THE CALL" about this young man on December 11, 2003 .. he was 11 days old!  We were placed with him because we already had his cousin, Gina in our home.  (yes, their beautiful birth mothers are sisters) and he came home when he was 19 days old.  And all of a sudden, Gina grew into a GIANT when we saw this tiny little not even 5 pound baby boy! 

Chris is full of energy!  He can run run run and hardly becomes tired!  he LOVES Math and numbers, and would LOVE to do what the "Mythbusters" do when he grows up. lol.

He is quite funny and has the greatest smile in the world!  He loves to help with the babies, yet ... only for a few moments, cause he's gotta be on the go!  and, he simply ADORES Super Mario Brothers. 

What we have to do now though, is teach this young man to go to SLEEP before midnight ;) (sadly, he has problems going to sleep)

Gina

Gina is my oldest.  She is 8 going on 18.

We first received "THE CALL" about her on March 11, 2003 ..  on her 6 month birthday.  We brought her home on March 21 ... and she has been a delight ever since!

She is a beautiful, loving, helpful, STRONG WILLED young lady with a lot of potential for the future.  She loves to laugh, and make others laugh.  she LOVES being a big sister, and loves helping with the babies.

One problem though, is that she and I are very much alike.  This is good in many ways, yet, we are so much alike, that we clash.  She is very strong willed, as I said before, and likes to have the last word.  (yeah, she's going to be "FUN" as a teenager, let me tell ya!)

Even with her strong will, she is a great daughter and I am SO LUCKY to be her mom!

havent blogged in YEARS

Well, I have decided to try my hand at a blog once more.  I havent done this in years.  Back when blogging first began, I was actually in the handful of first gen. bloggers.  I created my own blog, with my own HTML, (yeah, before blogspot even began!!!!! LOL) .. there were no blog servers at that time.  I had a handful of followers .. made a few good friends.  I even worked with a few graphics design friends and created a "free blog layout" website, and we created blog layouts that anyone could use.  it was a LOT of fun! but then, life got in the way lol.

I have a lot 'going on' now.  I am the mother to 5 active kids .. Gina just turned 8, Chris is 7, Maya is 3, and Gracie and Nik will be a year old in November.

Gracie has a lot of medical needs, so she fills up any spare time my other children might leave.

There are times though when I just need to "TALK".  I have facebook, which is FANTABULOUS!  but, I cant "let it out" as much there, if you know what I mean.  So, here I am, back in the blogging world.  Lets see how long this lasts ;)